Ever heard of progressive supranuclear palsy? Corticobasal degeneration? Multiple system atrophy? Yeah. We didn’t think so. These diseases are often called “atypical Parkinsonian disorders,” and, in addition to being devastating, they’re extremely rare. So naturally, they have their own joint advocacy organization, called CurePSP, which tackles all three disorders listed above, plus anything else that fits, including amyotrophic lateral sclerosis-Parkinsonism-dementia complex of Guam and Guadeloupean tauopathy.
As much as we don’t like writing out all those tough-to-spell disorders, we do like talking about CurePSP—an innovative, groundbreaking organization. Like other organizations invested in cranial matters (in other words, the brain) it’s emphasizing basic science, and we think that’s smart.
In the brain realm, researchers and the philanthropies that fund them face two main roadblocks: One, there isn’t a ton known about the brain; and two, it’s devilishly difficult to attain any level of expertise or even proficiency in brain science, partly because what we know keeps changing. So philanthropies are left somewhat in the dark, without much understanding at all of what projects they should be funding or why. Which helps explain why CurePSP has established a great Investigator-Initiated Research Project program, asking for brain researchers themselves to recommend their work for funding via this quick-moving RFP.
It’s offering grants of up to $100,000 for these projects, and we love its investigator-initiated approach. Who better than researchers themselves to know the best and brightest brain research projects and recommend them for funding?
Read the full RFP here.