Does Anyone Care? A Case Study of Funding Research on Rare Diseases

Does Anyone Care? A Case Study of Funding Research on Rare Diseases

Funding for rare diseases rarely comes from foundations or billionaire donors. Instead, it mostly comes from the families and friends of people affected. Here’s an example of how a small community of donors can underwrite significant research.

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“Why Would Anyone Want To Do This Work?” A Fundraiser’s Lament

“Why Would Anyone Want To Do This Work?” A Fundraiser’s Lament

Do today's young people have what it takes to succeed in grueling jobs that generally consist of 90 percent rejection? A veteran fundraiser reflects on the growing challenges—yet exhilarating upsides—of chasing donors.

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