Mike and Sofia Segal came to the U.S. in 1978 from Ukraine with $120 and built a fortune in the electric power industry. Now, they're rolling out a set of big donations, starting with a $17 million gift to fight a rare blood cancer.
Read MoreOver 25 million Americans live with rare diseases, and 90% of rare diseases do not have an FDA-approved treatment. We look at how the National Organization for Rare Disorders is moving the needle in this evolving field.
Read MoreRarebase is a public benefit corporation that uses genomics to identify treatments for rare diseases. The firm’s unique model relies on small foundations and patient advocacy groups to acquire funds and patient data.
Read More
Whether you raise money or give it away,
Inside Philanthropy is an essential resource.
